A digital place for people who access services, carers, staff and partner agencies, to share ideas around care co-ordination & care planning in mental health


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At the March Service User Network (SUN) meeting there was a discussion carried forward from the previous meeting. The SUN members wanted to explore areas that they would like choice in. The following two questions were addressed at tabletop discussions, and the responses are condensed:

1. What would you like choice in?

  • Which service I am involved with
  • Choice of worker and who I work with – gender, CPN/Support worker/care coordinator, access to different professions, seeing the same worker
  • Appointments – flexibility in where we meet
  • Involvement in planning care – reviews: how often, who attends, what is discussed; involved in agreeing care plans;
  • Medication – the different options, including not taking any medication, easy access to a second opinion
  • Treatment and therapy options – CBT, DBT, TC; what we do not want and what we do want, including ECT; access to complementary therapies; mindfulness
  • Access to peer support – including courses (Mind), easy access
  • Personal independence budgets
  • Where I live and the things I do – like cooking, what I eat, and watching sport
  • To have the right to make my own choices

2. How would you like to be treated as an individual within Mental Health and Learning Disability services?

  • Treated as a person, not an illness
  • As an equal – regardless of my characteristics
  • Non-judgementally – with respect, compassion and understanding
  • As an intelligent person – just because I have a mental health problem doesn’t mean I’m stupid – people can talk down to you!
  • As an expert in my own issues and life
  • As a customer – eye contact, honesty, humane, respect my sense of urgency in crisis
  • To be talked to, listened to and liked – to be seen as worth getting to know and be with
  • That my feedback is accepted – that what I say has value

These points will be discussed at the April SUN meeting and next steps in moving this forward decided. How would you like to see this – as a charter? a ‘best practice’ support? All ideas welcomed!

What is your view from a mental health professional, carer or partner agency  perpective? Feel free to comment…..

Please leave a comment if you have anything to add to these suggestions…….

The next SUN meeting is on Wednesday 2nd April at St Chad’s Community Hall in Headingley; the guest speaker will be Dr Jim Isherwood, LYPFT’s Medical Director – click here to see the flyer. All are welcome to attend, but if you can’t get there, please feel free to post any comments or questions you may have for him here or email donna.kemp@nhs.net

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Comments on: "Choice & how people want to be treated: key messages from SUN" (4)

  1. Yvonne Liddell said:

    All the things listed as choices that people want should be part of Best Practice as a matter of course. Is there going to be a similar meeting held in York and if so when?

    Like

    • Hi Yvonne,

      The plan is that there will be similar in York; just working on how this will come about – resources, location etc. Do hope you will get involved when we are up and running.
      Donna

      Like

  2. Are these open to locals or service users of your area only?

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    • The Service User Network (SUN) is for people accessing mental health and learning disability services across Leeds and York. SUN is part of the NSUN network for mental health – check their website http://www.nsun.org.uk/ for details of other service user groups across the country.
      Hope this helps!
      Donna

      Like

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