A digital place for people who access services, carers, staff and partner agencies, to share ideas around care co-ordination & care planning in mental health

About Planning Care

The Planning Care Network is about sharing experience,  ideas, best practice and about getting involved in shaping the development of planning care initiatives.

Planning Care matters because it makes a difference to the experience that people have; it includes things like:-

  • Assessing
  • Care coordination
  • Care plans and care planning
  • Reviews

Though people often tell us its about how we are with people that really makes the difference.  So we should be aiming at getting that right first.

So, my question to you is:

what would make a difference now; what would make ‘planning care’ better?

Comments on: "About Planning Care" (7)

  1. Hi there,

    Thankfully I haven’t had the same difficulties those above have had to deal with. It sounds very dismissive and frustrating.
    I have been lucky enough to have had the support of really great staff both cpn’s and doctors alike for many years.

    The thing I feel should be addressed ithough is how as service users we aren’t really included in much of the decisions around our care. Personally speaking it has at times felt everyone else was deciding what was “best” for me, what would be most helpful or unhelpful, what was effective or ineffective and what I could or couldn’t do. It has felt I was merely a puppet that had to suffer the consequences of others decisions come 5pm when everyone clocked out I was alone to handle them.
    My cpa has never been much help neither was my crisis plan. Both seemed some what generic and in all fairness could have been speaking about any number of people with the same diagnoses. It didn’t feel it really represented me, my life, my struggles, my hell and more importantly what I thought, what I would like and what I thought was effective, helpful or not so. My cpa has often felt it’s others perceptions, choices, where they think I am and how they think I should move forward. Then there’s the crisis plan which again has always been some what genetic and not of any really use to myself or anyone else for that matter.
    So then after addressing all of this with my CPN she agreed to allow me to write my own cpa and crisis plan.
    This was the single most amazing thing services have ever done for me. Not only did it put me back In charge of my life, my illness and my future, it gave me the power to say what I think is best for me and let’s be honest who knows me better than me?!
    I set to work, now this was far from easy and it certainly made me think in a whole new way, like from outside the box but with all the knowledge and understanding of what’s inside it. It challenged me and took me a long time to really think what it was I would like and how I see my future, what my triggers are, how I feel and what I think would be helpful in crisis to me and for others trying to support me.
    It was truly liberating, empowering and insightful. It felt amazing to have my say, to be included in decisions about my life. I felt privileged to be able to share my prospective, the rubbish thing is though it shouldn’t feel a privilege, it should be a given I/we have a say after all it’s our lives and us that experience the dispair and turmoil and we know ourselves better than anyone else.
    I am proud (which I never am of anything) of my cpa and how it now represents myself. I feel confident it’s a well documented form that will not only be incredibly useful to me everyday not just in crisis but also to those who work and support me. It’s a form anyone could pick up and have a clear understanding of me (in brief) my struggles, my hopes and goals, what will help, what doesn’t and how best to support me at that time.

    I feel every service user (and that’s a title I think should be changed) should be given the opportunity to have their say, to be included in decisions and be heard.
    We may not have a fancy title, we may not have a degree under our belts but we do have the right to have our say on the decisions that effect us at the end of the day because we don’t get to clock out at 5pm or have weekends off, this is our life.

    Sorry for going on do much, thanks for reading.
    Take care to all,
    Maria

    Like

  2. pam dolan said:

    my CPa hasn’t been corrected since i left the becklin centre last jan. it has led to me complaining been the only way to get it corrected and then it was still wrong and has been passed to someone else to correct.and im still waiting for a copy…I agree with Iain, i appreciate workers have large case loads but that not our problem, each user should be treat as an individual and given the time and care needed cancelling appointments or non contact just affects us and puts us in danger. and we are left to climb out of a big hole alone… its awful feeling like this.

    Like

    • Hi Pam,

      Thank you for sharing your view and experience; I appreciate your candour; treating you as an individual, keeping appointments and maintaining contact is important, Thank you for sharing the impact that not getting this right has on how you feel; it certainly highlights the importance of this issue.

      Like

  3. I think we need to change the name at a meeting i attended the other day My Plan came out as favorite or My Life Plan? We need to emphasize the importance of the plan to everyone and ensure it is kept up to date with any changes in the person’s life. We need to ensure continuity and regular contact with people. When staff are on holiday’s sometimes we have no contact. My CPN left recently and it took over a few weeks to be allocated another, they then said that i don’t need any interventions? My psychiatrist differed and asked that i be seen. Not very professional. Also staff have too many on there case load so can’t give quality time that is needed in order to help a person on the road to recovery.

    Like

    • Hi Bev

      Thanks for your feedback and sharing your views; noting that regular contact, continuity and time are important to recovery & wellbeing. I will copy your post onto the care plan question post too as its very relevant – thanks again!

      Like

  4. Iain Turnbull said:

    My answer to your very valued question :

    For Care Workers to keep to the appointments they have made with users ! mine lets me down very regularly, its not good for us, it doesn’t give us much trust, it doesn’t help our confidence, it doesn’t make us feel good. Recently my carer let me down, once I didn’t hear from anyone for 3 weeks then again after I had an appointment I didn’t hear from him for another 3 weeks. When we did meet I expressed my views and I was told that the management had made a decision that any one the carer thinks was recovering well put them as not urgent from one week to 3 weeks. All that did for me was to put me in a down ward spiral as he and me agreed I wasn’t ready. I would like to thank the Management for playing a very dangerous game with peoples lives, congratulations on getting the figures right. WHO DON’T HAVE A CLUE. I am slowly picking up the pieces but it could have been a very, very different story.

    May I wish a very merry Christmas to all users and to believe its not your fault were not well, but keep your inner strength strong, you can and with strong belief we can get better.

    Take care

    Like

    • Hi Iain,

      Thank you for sharing your views on what would make a difference – keeping appointments and good communication are important; thanks for pointing out the impact that these have on getting better. Wishing you a merry christmas too – really like your words of strength and hope!

      Like

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